Expressions of interest from members in or around the Wagga Wagga, Albury and NSW South and Sapphire Coast areasPosted 24 February 2011
The Association is planning to make a trip to the Wagga Wagga, Albury and Sapphire and South Coast areas in the first half of this year and would like to hear from members and service providers who feel they need support and education in the care of their relative, friend or client with Huntington’s Disease. Please contact the Association on 9874 9777 or email me ramona@ahdansw.asn.au to let us know what your needs are and we will endeavour to do our utmost in supporting you.
Developments on the Far North CoastPosted 24 February 2011
I (Mark Bevan) am planning a trip to the far north coast of NSW in April this year. I will be linking up with the Queensland Association, who currently provide support to Huntington’s families in the far north of NSW, and working with them on how the NSW Association can assist in providing support to Huntington’s families in that area.
In addition to that, I will be visiting other areas on the north coast down to around the Kempsey area. The preliminary plan is to travel in the week beginning April 11, and visit as many people as possible, catch up with some Qld Association workers, meet with Huntington’s families and related health professionals near the border, and those further south, down to around Coffs Harbour and Kempsey. If you live in any of the areas I have mentioned, I would love to hear from you – you can email me mark@ahdansw.asn.au or call me on 0410 629 850.
Do you live in or near Broken Hill? Armidale? Tamworth? Dubbo? Orange?Posted 24 February 2011
Do you live in or near Broken Hill? Armidale? Tamworth? Dubbo? Orange?
To say I am excited is an understatement!
I am planning visits to Broken Hill, Tamworth, Armidale, Dubbo, and Orange in the first half of this year.
I will be contacting genetic counsellors, health centres, various medical professionals, and Association members in preparation for the trips, with a view to meeting on my trips as many Huntington’s families and associated health professionals as possible, so that we can understand how to more effectively support them in the future.
I would love to hear from you if you live and/or work in these areas. Just email me mark@ahdansw.asn.au or call me on 0410 629 850.
Time to Think About CAMP!Posted 6 January 2011
A highlight for our members is the annual camp.
As in the previous years, we will be hosting our camp at Camp Breakaway, located in San Remo on the Central Coast from Monday 14 to Friday 18 March 2011. The camp is open to Association members with HD and their carers, and we welcome you to come and join us for 5 days of pampering, great food, excellent company and lots of laughs.
The camp will also provide much needed respite to carers (spouses, parents, siblings, friends) who care for people with HD and provide them the opportunity to relax, share problems, ideas and concerns. Camp Breakaway is set in 25 acres of peaceful bushland reaching down to Lake Budgewoi, and is specifically designed as a place where people with disabilities can have a "break away" from their usual routine.
Accommodation is in cabins (twin share), with en suite bathrooms and disabled access. Recreational facilities include:
Please call us at the Association or email Ramona ramona@ahdansw.asn.au or Lily lily@ahdansw.asn.au for a Camp Application Form.
Family and Friends Support GroupPosted 6 January 2011
Huntington's Disease Service and Huntington's New South Wales invite you to come along to our FAMILY & FRIENDS SUPPORT GROUP for a get together with other carers who, like yourself, are caring for a partner, a family member or a friend with HD. Come along and join us as we share our chatter, laughter, tears and experiences.
Sessions will be held at Huntington's NSW Offices, Elsie Court Cottage, 21 Chatham Road West Ryde NSW 2114.
2011 Sessions
For RSVP and further information, please contact: Social Work Department at Westmead Hospital c/- Jet Aserios - 98457528