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Robyn Kapp has been the Executive
Officer of the Australian Huntington's Disease Association
(NSW) Inc. since 1983. She was National Chairperson of the
Australian Huntington's Disease Association between 1985 and
1997, President of the International Huntington Association (IHA)
between 1993 and 1997, and is now an Honorary Member of the Board
of the IHA.
In 1999 Robyn was awarded the Order of Australia Medal (OAM) for her services to both the Huntington's Disease community and the Spastic Centre of New South Wales.
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