Lifestyle and Huntington DiseaseThis fact sheet discusses some of the strategies which can be used by families and carers supporting someone at home, as well as residential care staff supporting someone in a residential care facility, to facilitate active engagement in both leisure and domestic activities.
Price: First copy free, additional copies $1.00 each
Communication and Huntington DiseaseThis fact sheet provides practical advice for carers, family members and friends on the most effective ways to communicate with the person with Huntington's Disease.
Price: First copy free, additional copies $1.00 each
Making a Decision about Residential CareMaking the decision to move into a residential care facility can be one of the most difficult decisions faced by people with Huntington's Disease and their carers. This fact sheet explores the process involved in making the decision about residential care and presents some of the issues that need to be taken into consideration when choosing a residential facility.
Price: First copy free, additional copies $1.00 each
Living with Someone who has Huntington
DiseaseThis booklet looks at the types of difficulties experienced by people affected by Huntington Disease - from the perspectives of someone diagnosed with the disease, and someone caring for the person. It then discusses what causes the difficulties and how to manage them.
Price: First copy free, additional copies $1.00 each
The Importance of Dental Care in Huntington
DiseaseAdvice for meeting the special dental needs of people with Huntington Disease.
Price: First copy free, additional copies $1.00 each
Eating and Swallowing Difficulties in
Huntington DiseaseDifficulties with eating and swallowing and maintaining a constant body weight are among the most troublesome complications of Huntington's Disease. This booklet provides practical advice for carers on how to manage these problems.
Price: First copy free, additional copies $1.00 each
This publication is temporarily unavailable.
Dr Julie Snowden. Understanding Challenging
Behaviour in Huntington's DiseaseOriginally presented at the 14th meeting of the International Huntington Association held in Denmark in August 2001, this article attracted much interest when published in the March/April 2002 issue of Gateway newsletter.
Price: First copy free, additional copies $1.00 each
Karen Keast. Guidelines for Meeting the
Nutritional Needs of People with Huntington DiseaseThese guidelines were first published in the September/October 2001 Gateway newsletter. They can also be read or downloaded on this website.
Price: First copy free, additional copies $1.00 each
Rosenblatt, A. et al. 1999. A
Physician's Guide to the Management of Huntington's
Disease, Second EditionOriginally published by the Huntington's Disease Society of America. An up to date summary of issues in diagnosis and management.
Price: $7.00 each
Paulsen, J.S. 1999. Understanding Behaviour
in Huntington DiseaseThis book is intended to help families and professionals to better understand the causes of behaviours in Huntington's Disease and to provide strategies to cope with difficult behaviours. Originally published by the Huntington Society of Canada.
Price: $6.00 each
Pollard, J. (ed.) 1999. A Caregiver's
Handbook for Advanced-Stage Huntington DiseaseThe aim of this book is to familiarise carers with Huntington's Disease, so that they can recognise its symptoms and know what to expect as it progresses. It also includes general principles of care and tips that other carers have found useful. Originally published by the Huntington Society of Canada.
Price: $6.00 each
Return to main publications page to order any of these publications.
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