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The Association was established in 1975 to develop support and educational programs for people affected by Huntington's Disease in New South Wales and the Australian Capital Territory; to assist their families to understand and cope; and to give these families a strong single voice. |
Our Australian Business Number (ABN) is 54 571 730 306, and we are endorsed by the Australian Taxation Office as a Deductible Gift Recipient. Gifts of $2.00 and upwards to the Association are tax deductible in Australia. |
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We are licensed in both New South Wales (Authority No: CFN13153 expires 20 January 2011) and the Australian Capital Territory (Licence No: 90 expires 30 June 2013) to fundraise for our charitable purposes. |
We are an incorporated, non-profit organisation managed by a committee elected annually by our membership. The Association's President is Anne Low and the Executive Officer is Ingrid van Tongeren. |
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Office Bearers:
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Board Members
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The energies and resources of the Association are directed towards satisfying the needs of people with or at risk for Huntington's Disease and their families in NSW and the ACT by providing and/or facilitating delivery of a range of quality services.
The philosophy underlying all our services encompasses the principle that people with Huntington's Disease and their families are individuals with equal value to all other members of Australian society, with the right to treatment and care by knowledgeable professionals and care givers, the right to to appropriate support services and the right to have the best quality of life possible.
The website was constructed with, and is largely maintained by, voluntary effort. Your comments on its usefulness, or suggestions for improvement, are appreciated and can be forwarded by e-mail to the Webmaster at: borclaud@tpg.com.au
On this website we may informally refer to the Association as the NSW Huntington's Disease Association.
Follow these links for further information about us:
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